A little about me! :-)

Jude and Isaiah

My first baby..my 4 year old son was born with bilateral cleft lip and palate. I didn’t know how I was going to handle everything I was going to need to do to help him to grow and go though the surgeries. I remember how nervous and scared I was. It was going to be a rough ride for all of us. I remember taping his lip and him screaming and crying and me crying because I just felt so bad but knew it would help his lip to grow the way it needed to for his surgery. When I found out I was pregnant with my second baby…my 3 year old son, I was so scared that I would have to go though all that again and emotionally I was a wreak. Though all my ultrasounds they looked closely at his face and no signs of a cleft. That was such a relief. Well SURPRISE when he was 17 days old he suffered from not 1 but 2 strokes. We rushed him to the closest hospital where they ended up life flighting him to a local children’s hospital. They performed xrays and ran tests and after HOURS of waiting they finally came to talk to us. They didn’t know why it happened but one side of his heart was enlarged and the other side wasn’t working at all. At 20 days old they told us they would need to perform surgery for his heart but due to bleeding in his brain they were hesitant. They told us that if he had the condition hypoplastic right heart syndrome they could put a % chance on his survival but since he had extra heart conditions and the brain bleed they didn’t think he would make it. O.K. I made it though the cleft surgeries but this is HUGE life threatening surgery.
Before his first surgery I had a dream of my boys at about the ages they are now rolling around on the floor fighting. To me that dream was God’s way of telling me everything would be ok and my baby would make it. I remember during his first surgery I was so relaxed and not worried and I honestly felt really bad that I wasn’t a mess waiting for reports on my baby. Well after the surgery the nurse came out and told us he had actually died twice but they were able to bring him back both times. He has now been though 3 open heart surgeries and is doing AMAZING. The doctors are in shock that he is the little boy they gave no chance to live. It is amazing to see their faces when they see him and how happy it makes them. We have been very blessed with FANTASTIC doctors for both my boys. Doctors who are so dear to my heart I could never express the beautiful things they have done for my babies. The great part about it is none of the doctors takes full credit. They all have expressed that they couldn’t do what the do with out our help and the help of our Amazing God!
I look at things that happen in life now and I know we can make it though because God brought us to where we are for a reason and he is standing by watching over us protecting us. I need to take better steps at teaching my children to give more thanks to God for all we have. When they are older I hope they can go out and share their stories and inspire others to live life to the fullest and praise God our Father in Heaven!

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Comments

  1. Chris Schnell says:

    As your mother, I want your readers to know what an inspiration you were and are to me. I remember how you jumped into action when you got the news from that first ultra sound. Researching doctors to make sure you found the right one and all the time never loosing your faith in God. I love you ! Mom

  2. Lori, what an amazing story of faithfulness all the way through these ups and downs! Aren’t kids the biggest blessing?!!? Thanks for sharing!

  3. Wow, what an amazing story. A difficult journey, but you pulled through! I’m glad to hear your boys are doing well.

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